Wednesday, January 28, 2009

tough day

We will be leaving tomorrow for Riley Hospital for Children.
As many of you know our daughter Emily has multiple congenital heart defects. She is scheduled for a cardiac catherization tomorrow am and is not a happy camper about it. We have done caths many times as well as 5 open heart surgeries from the times she was just days old. I am not sure that it is getting any easier with her age. She is able to understand more, but that is precisely the problem. She does know what is going to happen and isnt happy about it in the slightest! When we first talked about it several weeks ago she said "I dont want to do this, I have rights and you cant make me...I will just tell the doctors I wont let them do it and then I can go home" Talk about attitude. That is certainly what has helped her through this, but I am nervous about it now. We have talked about it and about how God gave her a "special heart" and we dont know why but how it is important to trust in Him. We have talked about how unfair it may be and how much she doesnt want to do it..(neither does Mommy) We have talked and talked and cried and talked and she says that she understands why she has to have it done now, and will do it but she is NOT happy about it. A coworker was sweet enough to bring us lots of samples of makeup (she is a mary kay consultant as well) so that we can do each others make up after the cath...she is excited about that...I am a bit scared :-) I rented her the new movie that she wants City of Ember. My mom brought over a new stuffed animal and candy. She got to pick pizza for dinner tonight. It is so hard to do this even though we have done it 14 times. Feel free to comment with any ideas to make it more fun for her

1 Peter 5:6-7
Humble yourselves, therefore, under God's mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

This is really a struggle for me tonight. I would ask that any of you who are reading this pray for Emily as she undergoes her heart cath tomorrow, for The Lords protection over her and that He gives us both peace in our hearts about it.

I know that really she is His child and He has entrusted me to care for her for as long as she is on this earth. I just need help remembering it sometimes! :-)

Enough melancholy....Here is a pic of my girl just so you can have a face with your prayers.....
IMG_0231


we will be posting updates here as tomorrow progresses!! We are scheduled to arrive at 7 am and we are first case barring any emergencies!
Thanks in advance for your prayers

2 little notes from friends:

Sheryl said...

I will be praying for your sweet girl. That peace that passes understanding will come over her and you. She sounds like an amazing child! Blessings, Sheryl

Jesse, James and Lindsey's mom said...

Prayers to you. It sounds like you are doing everything right..being honest and loving...God Bless
Kathy